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07 May 2008 @ 09:39 pm
L is for Lupus, an online directory of reviews and recommendations for patients by patients, has officially gone online today.

Bear in mind, this is just the beginning. This site will not be limited to just lupus-related material. I've begun to include Fibromyalgia books and websites to review, and I hope to include other auto-immune diseases as well.

I'm very excited to be ahead of schedule! Please help get this started and write some reviews! Your opinion will help others research their auto-immune disease. I hope to see you there!



 
 
22 April 2008 @ 09:58 am
Beginning May 15th, 2008, L is for Lupus will be an online directory of reviews and recommendations for lupus patients by lupus patients. An online community/bulletin board is also in the works.

L is for Lupus is currently seeking submissions for books and other items to review. We're not ready to accept actual reviews just yet--that will begin on May 15th. If there's something you would like to see reviewed on L is for Lupus, please let me know by posting below or send me an e-mail!






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L is for Lupus on LiveJournal



 
 
01 December 2007 @ 11:26 am
I have TN, or The most painfull condition know to modern medicen.Pain of the 5 crainal nerve, face pain on both sides now. and Burning mouth syndrom. Atypical, sort of being treated by drugs, but am in pain most of the time. It only hurts when I am feeling sorry for my self.
Am also alergic to everthing in the world. Including UV lights,(migrains, using any sort of perfumes, or fake foods, have to do all natural, latex, non natral clothing, apostery cleaners, carpet fresh air fresheners, fabrease laundry soap with sulfates, mold dust food yeast ect,,,

I have not been able to work for the last 3-4 years or so, my last job was on a suicide hotline, and as they put it, what if I had a atack when I was on the phone with a caller?
Any way, my life has sort of sucked aside from my Nanday, who is also my Medical asistance bird,
He know when I am about to have a migrain, Facal, and will start pulling things out of my drug bag for me. or he will presure bite the pints on my face to stop a atack. I have a scar on my chin from one spot that he has beaked over and over, that stoped so many atacks that were so painfull.
As strange as it sounds, he even will reach up into my nose and tap a place that will keep a atack from happening, and just prean my face when I can not touch my face my self.

When ever one else abandoned me Peter was there to talk to me and be the sweet clown and make me feel better.

I have a document from my nurolegest that he is a medical asistant bird, as he witnised him pick out the same homiapatic meds 4 time in a row for me, and press the right spots on my face in the nerve path way. (as acupunchure would show on a chart for that.)

I have two Chow Chows, that my Alergist wants me to give up, due to ther dander and hair. I love them very much, have had them after I had the stroke, but before I had the TN,
Ther were both rescue Puppys, at about 9 mts, living out side in a 9x9 pen with 4 more puppys. The breeder had been giving his cull dogs to his nefew, the ones that he could not sell as they were not show quality. (ears not perfick body too long, not all black in the mouth.. ect.)
I found out about the county going to take the dogs and put them down if they could nto find a home for them, and that one was named Bear. I had to rescue one, as I had lost a Half Chow Due to some one Leting him excape, and he was killed by a car.
It was a long drive. about 7 hr. My friend went with me, but when I got there, I found that Bear had a brother, Lucky, the Puppy that had been still born, and brought back. He was a bit slow, and timmid, and would only do things that Bear would do, I was told.
My husband would kill me If I had two dogs.
As I loaded Bear into the car, I heard a soft whimper. I knew that Lucky was coming with me.
Lucky is a bit slow. He did not "get" clicker training, but he will do it at home if he sees Bear doing it. Of Late, he has been a lot more independent, and will start doing things on his own, staying in, or going out on his own.
He will even eat things that I give him with out Bear eathing it first.
My pokey puppy is learing. He sits when you hold something that he likes.
But he always knew that the Leash ment a walk.
 
 
Current Mood: amusedamused
 
 
30 November 2007 @ 10:45 pm
What a brilliant idea for a community, really!  I read the first introduction post and I'm coming in from the other side -- I have what most people would consider a disability, and a normal (well, for a parrot) pet.

I was born with achondroplasia, which is, I believe, the most common form of dwarfism.  Obviously, this left me short (I'm now 24 years old and topped out at 4'2" tall), and with miscellaneous other problems like chronic ear issues, back pain, joint stuff, and a whole host of little things.  Comparatively speaking, I got off pretty easy for someone with dwarfism, but it's still enough that day to day life can be an utter pain in the ass at times!

One of the things that helps me get through things is Judah, the cockatiel seen in my icon.  He turned two years old on April 1st and has been a huge part of my life since I got him at 5 months.  My previous cockatiel, Eriza, was lost during emergency surgery from being egg-bound, not long after I'd moved to a new state, and I was pretty..well, screwed up!  The panic disorder that I was diagnosed with later flared up something horrible from all the stress, and without Eriza I was miserable living in my lonely little apartment.

I'd contacted breeders and rescues, but the latter had nothing and the former were done with their breeding season and had no babies.  So I sort of gave up, until about..two months later, one of the breeders emailed me stating that someone had backed out of a purchase of a 5 month old baby boy, and did I still want a cockatiel?  Of course I did, so within two days I jumped in my car and drove about 30 miles to find this little white ball of fluff waiting for me.  Love at first sight.  About a week later, he was home, and he's been my companion ever since.

Judah's a cockatiel, and a boy, so he has his moments when he makes me want to tear my hair out and make parrot stew, but for the most part, he's lovely.  With both physical and mental stuff going on, he's a joy.  There's nothing for being hurt or being in a panic like having a warm little cockatiel snuggled against your neck, feet under your shirt collar.  He's really, really made my life better.

As for pictures, he has his own album section! 
Judah the Wondertiel
 
 
30 November 2007 @ 10:30 pm
I am Nicole, better known at pickleboot.Read more...Collapse )
 
 
 
10 September 2007 @ 01:03 pm
Since I have asked for introductions, I should be the one to start.

My introduction and a few picturesCollapse )
 
 
Current Mood: chipperchipper